I found this video through our Facebook SDR site and thought I'd share it with you so it was clear to everyone what the SDR procure was really about. This is a great clip of how Dr. Park does the entire surgery and what this little boys endures while he is recovering. As of now the only difference that Peyton will be experiencing is a new epidural pain medicine that will last for three days post surgery. Almost giving him a pain-free experience while he is on bed rest. Please feel free to share and educate those who do not know enough about SDR so more families' and most of all, children can have the dream of walking like you and I!
Monday, February 20, 2012
Saturday, February 11, 2012
"Paint the Town" with the EFMP from Peterson AFB
Today we took part in a program that benefits children in need. This group is called EFMP (Exceptional Family Member Program). This even was put on for free for our entire family and others like us. It was held at "Paint the Town" located in Colorado Springs, CO (www.paint-the-town.com) The boys and Valerie had so much fun. Todd and I dedicated our paintings to the boys, they love their super heros! Valerie did her's all by herself.
Peyton sitting in a chair as we are getting ready to leave. He did so good today!
Me, Aiden, Todd, Peyton & Valerie. This is our amazing family <3
Tuesday, February 7, 2012
Monday Apt. in Denver
Sorry this is late, but I'm feeling a little under the weather.
We headed up to Denver yesterday (Monday) to visit with Peyton's doctor who gives him Botox and Phenol block injections. We wanted to touch base with her so she knew what was going to be happening in the next month. We also wanted to ask her for advice in his current medications because Peyton cannot have his Baclofen at least two weeks prior to SDR.
Dr. Stratton was pleased to see how well Peyton was using his hip-flexors and crawling so well. She told us continuing with his Valium is ok and that we could go up a few marks to help give him relief during his muscle spasms. Besides a long day in Denver and a much needed lunch at iKea, we headed home with two very tired boys. Just another step toward St. Louis..
Thursday, February 2, 2012
AMAZING DAY
Wow what a day, first we started off with our typical Thursday therapy routine. Peyton wasn't cooperating, Aiden spiked a fever and that threw me off right away. We had a full day planned, Aiden had a very important eye apt that was about to get canceled due to sick kiddos.
While we were at the pedestrians office , I thought lets get this referral going just incase we have any hiccups! I was in the referral guys office for an hour, he submitted two of the three which went through super FAST! I thought wow, no way. Then came the surgery one. It was declined. Really? I just want one thing to go smoothly. So I left his office with semi high hopes I'd get a phone call in a few weeks that things had been ironed out. As I was walking out Todd (AKA daddy) called and said Tri-care saw the referral and it was declined because it was entered in wrong. I could not run back down the hallway fast enough and ask him to re-enter it in again.
He did and not even 5 minutes later and I had tears in my eyes, then running down my face because it had gone through!!!!!!!!!!!!!!!!!!!!!!!!!!! I am overly joyed and excited, today has been amazing! Hope is just around the corner <3
While we were at the pedestrians office , I thought lets get this referral going just incase we have any hiccups! I was in the referral guys office for an hour, he submitted two of the three which went through super FAST! I thought wow, no way. Then came the surgery one. It was declined. Really? I just want one thing to go smoothly. So I left his office with semi high hopes I'd get a phone call in a few weeks that things had been ironed out. As I was walking out Todd (AKA daddy) called and said Tri-care saw the referral and it was declined because it was entered in wrong. I could not run back down the hallway fast enough and ask him to re-enter it in again.
He did and not even 5 minutes later and I had tears in my eyes, then running down my face because it had gone through!!!!!!!!!!!!!!!!!!!!!!!!!!! I am overly joyed and excited, today has been amazing! Hope is just around the corner <3
Wednesday, February 1, 2012
Hello all, Thank you for viewing my page. This is a start to the new journey we are up for in 2012. I call this the year of HOPE. Since last year, we submitted our application for Peyton to have a surgery called SDR (Selective Dorsal Rhizontomy). For more information on this surgery please check out this link: http://www.stlouischildrens.org/content/medservices/aboutselectivedorsalrhizotomy.htm
With the help of Dr. Park and his team we have a surgery date of March 27th. This surgery is so life changing Peyton will have the ability to walk. Something to many of us take for granted! We are new to blogging so if you have any suggestions please feel free to let us know.
Our goal is to get his story out there and give HOPE to someone else who is struggling with the same challenges! I call them challenges because this is something you can overcome.
With the help of Dr. Park and his team we have a surgery date of March 27th. This surgery is so life changing Peyton will have the ability to walk. Something to many of us take for granted! We are new to blogging so if you have any suggestions please feel free to let us know.
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